M.P.W.C. Hot Links!
- CBT Criticized -- letter from Maryann Spurgin, Ph.D. submitted to the American Journal of Medicine
- Testimony before the U.S. CFS Coordinating Committee April 29, 1998
- BRAME at Westminster - Meghan Shannon
- B.R.A.M.E. organization -- Blue Ribbon Awareness for M.E.
- M.E. Support in the Midlands (U.K.)
- BRAME at Westminster - Medical Professionals
- Westminster Report
- Dr. Glass article: Human/Animal Interaction in CFIDS -- an MPWC exclusive
- Rolling Thunder in D.C. -- report by Joyce Riley
- Desert Storm VetCenter Index
- A Lecture By Captain Joyce Riley - Jan 15, 1996 Part 1 Part 2
- Immunosciences Lab., Inc.
- CFS Radio Show Transcript -- Neenyah Ostrom
- Dr. Byron Hyde/Canada/web
- The Florence Project
- Martha Dewey Bergren's Home Page
- Medical News: http://www.pslgroup.com/dg/past7days.htm
- Search Sites for Nurses -- Webster's Fine Art
- Featured Sites at Webster's Fine Art of Nursing
- NURSENET Home Page
- UCD Med Informatics: ICD-9CM Coding Ref.
- Classification of Diseases
- ICD9-CM
- C.D.C. News Releases and Fact Sheets
- Literature, Arts, and Medicine Database
- Sir William Osler
- American Medical Association - Federation Directory
- Images from the History of Medicine (IHM)
- HealthWeb : Nursing : Education
- I-AIDS-jr/HillaryJ
- Neenyah Ostrom / Slate
- AIDS info
- John Martin's site / Stealth Virus research
- FOR PARENTS OF SICK AND WORN-OUT CHILDREN WITH CFS
- Sydney CFS Conference February 1998
- U.S. National Library of Medicine (NLM)
- Listing of National Disability Organizations
- Gulf War Syndrome Resources
- Alaska CFIDS/FMS/GWS Support Group Directory
- CHANGE THE NAME -- Survey Two
- Review of Lerner's CFS research, by Maryann Spurgin, PhD
- Demitrack & Abbey's book, reviewed by Maryann Spurgin, PhD
- NIH Teleconference: BUYER BEWARE
- Change the Name: Letter to Secretary Shalala
- CFS answers to Frequently Asked Questions
- CFS / M.E. web page
- May 12 Awareness Day
- R.E.S.C.I.N.D. organization
- Action for CFIDS / M.E. page
- Image of Florence Nightingale
- THE 25% M.E. GROUP -- This group addresses the 25% of people who get sick with ME/CFS and never really get back up out of bed again. Hence the name. They can be contacted at:
The 25% M.E. Group
c/o Simon Lawrence
52 Downfield St
Tollcross, Glasgow G32 8RT
Scotland
About M.P.W.C.
This group was formed in 1993 by Gail Dahlen and Meghan Shannon to give MPWC's an opportunity to coordinate their efforts, support each other, and make a difference for all PWC's.
MPWC keeps an updated and completely confidential registry of medical persons with CFIDS. This group includes nurses, MD's, medical technologists, physical therapists, respiratory therapists, pharmacists, psychologists, medical office personnel, and any other person who was in any way associated with a medical profession. Just as with other PWC's, some MPWC's are still able to work, some are able to work only part-time, and some are totally disabled.
MPWC participates in a variety of advocacy and awareness activities. We have successfully approached several medical magazines such as Advance/Laboratory and MT Today to do stories about CFIDS, specifically about CFIDS in the medical professions. We feel that it is extremely important that others who work in medical fields are aware of the inordinate number of MPWC's and the significant number of CFIDS "clusters" in medical settings such as hospitals, medical laboratories, and physician's offices.
Services
Below please note the questionnaire which we ask every MPWC to fill out and return as soon as possible. This information is kept strictly confidential but is essential so that we can update the MPWC Registry. At this time, there is no membership fee to join the MPWC Support Group.
We publish the Support Group's newsletter, the MPWC News, which is issued quarterly. The newsletter is edited by Lori Clovis. You can send us general correspondence, and your filled-in questionnaire, by sending postal mail to Gail Dahlen at:
Gail DahlenNewsletter submissions, suggestions and letters to the editor should be sent to:
50 Cecil Avenue
Indianapolis, IN 46219
Lori Clovis
P.O. Box 144
Hinsdale, NY 14743
you can send anything us by e-mail at: OR
GailD50@aol.com
or by FAX to 1-317-899-6033
Print this out, fill it in, and send it to: MPWC REGISTRY QUESTIONNAIRE
Gail Dahlen, R.N. 50 N. Cecil Ave. Indianapolis, IN 46219-5374or Fax to: 1-317-899-6033 or, you can copy, paste, fill out and email to GailD50@aol.com
For membership/newsletter ($20/year), contact anitab@frontiernet.net
Note: M/PWC questionnaire is kept as confidential as possible. It is used for study purposes for the group. THANK YOU for taking the time and energy to complete this questionnaire!
M/PWC QUESTIONNAIRE
Name: _________________________________________ Date__________ Medical Title/Degree______________ AddressE-Mail Address:________________________ FAX# ( )____________________________ Phone number (____) ______________ Best time of day to call ___________ Male ( ) Female ( ) Birthdate: _______________________ When did you first become ill with CFIDS/ME? _________________________ What was your age then? ___________________ In what area/unit were you working? __________________________________ When were you diagnosed with CFIDS? __________________________________ By whom were you diagnosed? _______________________________________ How many doctors have you seen for this illness? _____________________ How many doctors are you seeing now? ______________________________ What are their specialties? __________________________________________ Symptoms: List all of the symptoms you've had with CFIDS _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ (If you need more room, please use the back of this questionnaire, or a separate sheet...) What symptoms bothered you the most at the onset of CFIDS? ___________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ Which symptoms bother you the most now? ______________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ What kinds of tests have you had, and which were abnormal(*put a star before it)?: _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ What kinds of treatment have you had? (* Star those most helpful) _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ What kinds of medications are you taking? (* Star those most helpful) _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ ______________________________________________________________________ Are you pleased with your doctors? __________________________________ If not, why?_________________________________________________________ Did you know anyone else with CFIDS when you first got your symptoms? _____________________________________________________________________ How do you believe you got CFIDS? ___________________________________ _____________________________________________________________________ Do you think CFIDS is a contagious illness at some point or another? _____________________________________________________________________ Do you have, or have had a pet with CFIDS/ME symptoms or a diagnosis of ? ______ If so, is this pet still alive?______________ If this pet is still alive, what symptoms does your pet have now? _____________________________________________________________________ _____________________________________________________________________ How have you learned to cope with CFIDS/ME? _________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ What life changes have you had to do because of CFIDS/ME? ___________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ _____________________________________________________________________ What do your friends think of CFIDS? ________________________________ What does your family think of CFIDS? _______________________________ What do your co-workers think of CFIDS? _____________________________ Are you able to work? If so, how and in what capacity? ______________ ______________________________________________________________________ Are you disabled? If so, fully? _______ partially? __________ If so, (date) did you become disabled? _____________________ Are you receiving Social Security Disability? ________________________ If so, how long did it take for you to get it? ________________ If you had problems, what were they?____________________________ ______________________________________________________________________ Are you receiving private insurance disability? ______________________ If so, how long did it take for you to get it? __________________ If so, where there problems in obtaining this?____________________ ______________________________________________________________________ Are you a member of a local support group? _____________ If so, which one? ________________________________________________ Are you a member of a national support group?_________ If so, which one?_____________________________________________ Did you have any type of vaccination/immunization before or during your initial symptoms of CFIDS? If yes, which one(s) _____________________________________________________________________ What do you think of the official name of this illness, "Chronic Fatigue Syndrome?" ____________________________________________________________________ Is there another name you prefer? Why? _______________________________ ______________________________________________________________________ Have you filed for or tried to get Workman's Compensation? If so, explain: ____________________________________________________________________ Have you participated in International May 12th CFIDS/ME Awareness Day? _______ If so, how?:________________________________________________________ Do you write your Congresspersons?____Call them?____E-mail them?___ If not, why not?_____________________________________________________ *Would you like the name and address of another Medical Professional/Person with CFIDS/ME? ______________________ If so, are you willing to give out your address for a M/PWC "buddy?" ____ Any comments you might have about anything (you may need to use the back or another sheet):
